Posts Tagged ‘anger’

No More eggshells

October 31, 2012

   “Check on me in a half hour.” I told my wife this morning.

I planned to knock down 20 feet of rock wall  on  our 130 old barn.

barn-repair-001.jpg

The barn was built in the 1880′s.  I  can  still see broad ax marks  on many of  the supporting beams.

As a builder, I am in awe at the type of workmanship that went into this barn . Last September, I noticed the rock wall on the North side  starting to lean.   I knew if I didn’t do something about the rock wall soon, it was going to collapse.

As I tore into the rock wall , my mind went back to that season in our lives where we lived in a  Christian community.   For 18 months…. even though we had our own apartments, we shared  a common kitchen with two other young families.   Boy was that an experience. ;-)

Imagine 3 different households trying to coordinate  meal times, grocery shopping, and  parking.    There were some  intense moments….
(plus some great memories)

   One of the most valuable life  skills that came out of that  season  in my life was learning how to address issues instead of simply ignoring them.  Not only did I learn how to address and work through conflict with  the other people in our building,  we  learned how to work through conflict  in our marriage,  with our children, and on the job.

Our children are now adults.   I can see the fruit of conflict resolution skills  in their lives 20 years later.  They are much quicker to address things in their relationships than most of their peers.

Going back to that barn I was working on this morning, I couldn’t help but see some parallels to that time in our lives….

#1   Sometimes it can  get pretty messy when  I  first  wade into a problem.

#2  The bigger the issue, the more time and energy  I  will probably have  to expend.

#3  When I ignore a problem, it doesn’t mean it will somehow magically fix itself…all I am doing is postponing a bigger problem for  later…

guaranteed

#4  Living life this way (addressing problems instead of ignoring them)   has made my life so much richer…  I prefer relationships based on reality instead of  walking around on egg shells.

Another example….

Several years ago now,  we were attending a church  with a single  man  who had “emotional issues.”

Long story short,  he started wanting to hug my teen age daughters every week.    (Not the older women mind you, just the  young ones).  I approached the pastor and said,  he was making my daughters uncomfortable and someone needed to say something to him privately or I would  do it myself.

The hugging stopped.

One last story…

Healthy conflict resolution skills were NOT taught  or practiced in my family of origin..

They were not part of the family business I grew up in either.

I’ve refused to play along with the passive aggressive mind games and as a result, I am the black sheep.

Well, it’s about time to eat..better wrap this one up….

Thoughts, comments, questions?

As always,  thanks for stopping by the blog!  DM

Parents in pain

September 24, 2012

This post is written to the Christian parent who finds themselves dealing with a prodigal child (or children).

Dear fellow parent,

As I sit  here this morning, our children range in age from 32 down to 25.  The last 17 years have felt like I’ve chopped my way through the Amazon jungles on foot.  Many, many times I felt lost, did not have a clue as to where I was at or if I were even heading in the right direction .

I have to tell you, once the overt rebellious stuff started happening, I realized there is are overly simplistic and   naive  schools of thought in the Christian camp about our children and  how to keep them from wallowing in all of the crap this world has to offer.

You can do it all right…not try to jam your faith down their throat,  be an approachable parent, willing to own up when you’re wrong,  involve them in good activities,  try your best to help them find good friendships, and avoid the bad ones, participate in youth programs, church, even send them away to  a Bible school…do it all, and  there is NO guarantee, they will still not chose  to shack up with some looser of a boyfriend or, binge drink till they black out...week after week.….

Then what are you going to do?

Nag?

preach ?

take them for counseling?

Second guess yourself?

.if only I had been more firm when I first noticed  she had a strong will!

Why didn’t I do a better job of looking into _________________(fill in the blank)

What do you do with the anger?  Because at some point,  besides feeling afraid for your dear child, there’s a good chance you’re going to be angry about something that has happened…maybe their blatant disrespect or sass, …maybe at someone they “love” , or are running around with…

What

To

Do

About

The

Anger???

As I sit here this morning 2 of our 4 children are still sexually active outside of marriage. (at least I’m 95% sure they are, they’d never tell us that is the case, but  it doesn’t take a brain surgeon to  connect the dots…

So, what is my role in their life, and what is my attitude with them as they continue to make choices that will bring them emotional pain, not to mention some STD or unplanned child, etc?

What do I do with the stuff  you feel?

Biggest help has been finding another parent that “get’s it” and rant together.

Nothing wrong with ranting.

Second thing… I can’t emphasize this strongly enough…

Nagging does not work

Getting angry with them does not work

See, deep down, they feel conflicted…and second thing..it’s not about you,  if sure feels like it is, I know but it’s not…it’s between them and God…

And at the end of the day, God has got to be the one to reel them in, and he is able.  I’ve seen it twice now..and there is a good chance they will have even more spiritual depth than their parents when it happens.

Keep the lines of communication open

Resist those  temptations to draw a line in the sand and say..if you do ________________,  then I’m through trying….

Nope, best thing you can do, is to find another adult and unload.

Couple of final thoughts…

If you kids do happen to turn out, right, don’t be to quick to take the credit..

I’m sitting here 17 yrs into the crisis called parenting older teens and I still have my joy, the kids still love to come home for visit,  2 out of 4 have found their way back spiritually, and the wife and I still love each other…nobody said parenting was a walk in the park.

Drop me a note if you need to talk.   DM

Jake

September 2, 2012

Wanted to tell you a story about a chicken.

His name was Jake.

We raised 60 roosters this Summer.

20   Black-australorp’s

20 Silver- laced Wynadotte

and 20 Rhode Island Red’s.

Every morning I would open the door to the brooder house. The young roosters  would rush  the door like shoppers  on Black Friday….

all except the Rhode Island Red’s.  Only two of them were ever determined enough to go outside to put up with the constant harassment.

The Australorps and Wynadottes’s would simply   not allow the Rhode Island Red’s to leave the brooder house  to forage…

even in the 100 degree heat this past July.

Chickens really do have a “pecking order.”

Normally, once that has been established, the  pecking will taper off.

Unfortunately, it didn’t.

One of the two Rhode Island red’s I would see outside on occasion was missing all of his long tail feathers and many of the feathers on the back of his wings. (the other chickens had pulled them out)

In spite of the constant pecking, this red rooster would come outside and make the best of it.

He became very aggressive, even with me.

4 weeks ago, when I opened the door of the brooder house. I noticed a Rhode Island Red rooster giving me the evil eye.

7  feet away, on a perch .

He caught my eye, because of the way in which he was moving his head back and forth…

It felt like he was trying to judge the distance between us.

I imagined him thinking…

“Can I reach him  if  I really go for it?”

The next thing I knew he was in my face.

Sure enough, the red rooster without any tail feathers.

I decided right then and there to take him out of the mix and put him in a building by himself.  As much as I wanted him to have the freedom to run around outside, it was either that, or continue to allow the other chickens to pick on him and he become even more violent.

_____________________________________

He reminded me of a young man I met a few years ago.

His name was Jake (not his real name)

I taught a construction class @ the local community college/ started out with a dozen young roosters, I mean men..

Two weeks into school, two of the roosters, I mean  students, decided to challenge my authority.

It wasn’t pretty, but  when the dust settled, they knew  who was in charge.

I found out later, one of them, had lost his mother two years before  to cancer and had been having run-in’s with  authority figures ever since.

Just knowing that, changed my attitude.  Instead of wanting to kick him out of the program  so I wouldn’t have to deal with him, I was challenged by a friend to pray for him.

When someone knows you respect them as a person, but will not tolerate their crap, it is amazing to watch their heart  change.  I saw it in Jake the student, and I was beginning to see it in Jake the rooster.

Yesterday was “butchering day” on the farm.

It’s pretty quiet outside this morning.

I debated what to do with Jake.

I’m sure he would  have attacked another person if he had the chance

Since he’s a rooster, there are no eggs.

Plus I already have a pet Rooster…

his name is Little Moe with the gimpy leg :-)

Economic sense told me the best thing to do was butcher him with the rest of them….

I could have went either way.

 Jake

If you’re ever in the area, (we live in Iowa)   I’d love to introduce you to Jake and Little Moe

Sometimes stories really do have a happy ending.

My spiral into Depression

August 26, 2012

I learned at CCEF  ”almost anything can be at the root of depression: a recent illness in which you get behind in your work, hormonal changes, a reversal of fortune, the consequences of simple negligence, guilt over a particular sin, self-pity arising from jealousy or a disadvantageous turn of events, bad feelings resulting from resentment, worry, etc….the important fact to remember is that a depression does not result directly from any of those factors, but rather comes from a cyclical process in which the initial problem is mishandled in such a way that it is enlarged in downward helixical spirals that eventually plunge one into despair.

    Mine came about due to the death of a  vision.

WARNING: Going to talk about my faith….if that sort of thing gets under your skin….stop now…you won’t hurt my feelings.

______________________________________________________

May 4, 1980 7:48 PM I wrote this in the front cover of a little New Testament:  “I made a commitment to God to live my life for his Glory’

Translation:  Just like a  person entering into a marriage covenant , I entered into a “covenant” with God Himself….as an adult I made an intentional decision to become a believer.

As is often the case,  I desired to be more effective in reaching  out to other people…there was this restlessness in my life.  Looked at 50 different Christian Colleges, trying to decide whether to be a formally trained pastor, or marriage and family counselor…Moved from Iowa to New Jersey in 1985 (with two kids in tow) , enrolled @ CCEF, decided I was being called to be a bi-vocational pastor .   Carpenter by day,  teacher/facilitator when  I could….1990 returned to the Midwest with a strong sense of purpose.  I’d  experienced  5 years of intense discipleship/mentoring  in New Jersey and believed God had brought us home to pass on what I’d learned.

Things were great for the first 2  1/2  years,  then  began to butt heads with  our pastor  In hindsight, God set me up- we had two completely different  understandings for a healthy church.  His was a more traditional model-  I on the other hand craved  deeper relationships  that can’t be cultivated when you’re sitting in rows looking at the back of each others heads.  We had two different models..not wrong/ just different.  I know I  wore him out with our intense discussions.   It finally came to a head in November  of 1995- we left the church-  the hardest decision of my life (till then) – 90% of my closest friendships were in that church/ someone told me later, it felt like a divorce- (it did).

I was confused, I was angry-(I’m not giving you all the details- this would get too wordy)- I believed I would eventually  be a co-pastor that church….instead I was on the outside looking in.

The depression probably started  two years previous, and lingered  another year.  Things  gradually got better since 1996 – here we are 12 years later and there is still a bruise on my soul.  Just this morning, as we’ve been organizing our office, I came across several magazines and books related to mentoring and discipleship-  I pitched the magazines, and am selling  some of the books on e-bay. I have no aspiration or intention of ever taking an active role in leadership in a local church.  I’m no longer depressed :-)    just broken- and there is a big difference.

Have you ever wrestled with depression?  What triggered it?  What brought you out of it? (if you’re out of it?)   What good came from it (if any)?

Have you ever watched your life  goal  die?  What was it and where are you at in the process now?

_______________________________

I originally wrote this in 2008 .  I was interacting with someone this morning about depression, when I mentioned I’d gotten a little taste of it myself, they asked if they could  hear my story…decided to re-post it for my new readers (all 3 of you)  ;-) DM

Little Moe

April 30, 2012

Little Moe with the gimpy leg

________________________________

Rebekah tagged him  little Moe with the gimpy leg within the first couple of days after we got him. (She loves to quote lines out of old movies and said it was  from  Home Alone 2)

We’re raising 60  baby chicks this summer to butcher  in conjunction with 5 other local families.   free range and organic grain to supplement  their caloric intake.  We’ve had them now for 18 days.

While the other 59  chicks will run at the first hint of danger,  Little Moe will just stand there…..one thousand one, one thousand two… before he hobbles away,dragging his right leg behind him. burying his little body into mass of other baby chicks in the corner of the  room.

You’ve no doubt heard of the term “pecking order”.  There really is such a thing in the animal kingdom.  It comes from the chicken house.

Chickens really do establish who is the top dog (or chicken) in the flock.

Guess who’s @ the bottom of the pecking order?

Yep.

Little Moe.

I’ve always had a tender spot for the underdog  even back  in school.   While I was not low man on the pecking order,  I was certainly not at the top either.  Which in large measure why I do not  have many fond memories of my time in school.

I hated school.

It got worse once I hit 7th grade.

I can still remember  Ray, Randy, and Jeff pushing Greg out of the locker room with nothing on but his  jock strap.  Where the teacher was I have no idea.  Our locker rooms were right down the hall from the student center…

imagine  getting thrown out  into plain view of a  group of your peers with  little or nothing on…..

Another thing  the bullies  loved to do was come up behind you when you least expected it and pull your  gym shorts down.  they called it de-pants-ing…  Luckily, neither of those things ever happened to me, but I lived in constant fear of it happening from 7th grade right up until my senior year.

There was a girl in our class…Her name was Debbie Cooper. Kids called her “De-coop”    She was from a poor farm family.  She’d developed early, was somewhat over weight, wore thick horn rimmed glasses.  Gary  loved to harass Debbie…until she’d take a swing at him and then he’d laugh.

We had another girl  named Denise.  Pretty.  Transferred into our class  when we were in 6th grade.  Her mom had died and her dad was doing the best  to raise 2 girls and a boy.   I can still remember sitting in our 6th grade choir room, looking outside while another class of 6th graders were   outside for recess.  Gary  (yep, same one)  came up to Denise and pushed her down into the snow.   Where were the teachers????

Denise was shy .

All she wanted was to fit in. Somebody tagged her with the nickname “Scarecrow” ….

 

Imagine being a girl with a nick name like Scarecrow.

Want to close with  a short plug for an excellent book on this topic of bullying and emotional abuse.

Frank Peretti tells his true story  in the book he’s titled The Wounded Spirit

It is a must read for anyone who has been in the receiving end of this sort of thing.

____________________________________

Getting back to little Moe.  I’ve already decided we’re going to keep him long term…. :-)

Any thoughts or experiences on this whole issue of pecking orders and bullying?

As always thanks for taking the time to read my stuff.  DM

_________________________________

Update 4 hours later.…just brought my tomatoes in for the night.

I’m in the process of “hardening” them…In case you’re new to gardening,   these tomatoes were raised under a grow light in the basement and the cell structure in the plants is not strong enough to handle the wind and elements initially, so for a week or two before I finally plant them in the ground, I set them out during the day, give them a controlled exposure to the elements.

At night I bring them back inside and allow them to recover….unfortunately, a couple of the plants were really  tested today and two of them snapped in half.  My mind instantly went to this blog post about adversity and while some adversity is good for us (as Trish pointed out) making us stronger,  it is possible to  be broken long term…just like this:

Brandywine tomato plant snapped off by the wind  today

2 trays of tomatoes just in from a day of adversity.  Tray on the right doesn’t look to bad.  Tray on the left had a harder day.

Arne Saknussemm

February 24, 2012

In 1864 Jules Verne wrote  Journey to the Center of the Earth, a fictional story of 3 men, following in the footsteps of a Mr Arne Saknussemm, to the very center of the earth.  They encountered trials and situations beyond their wildest dreams.  At certain critical points, they would discover the name:

(Arne Saknussemm) carved into rock. That meant that in spite of what they were going through, that yes, they were on the right course.  Arne had been through this very same area and had returned to the surface to tell about his adventure, so they could keep pressing on.

I became a Christian May 4th 7:48 PM 1980.    Since that time, I have on occasion found myself in various  trying situations , some relatively short-term, others that caused me to stumble for weeks and months. For the most part, I have felt alone as I would attempt to gain (or keep) my spiritual bearings. Most of the mentoring that God has used to keep me on track has come in the form of good books and biographies.

While I am thankful for all of those timely books, I believe there is a better way….somebody who could have looked me in the eye and said, “Yes, I hear you,” or “Yes, I too can relate to what you are struggling with,” or “What you are going through happens more often than you might suspect.”

I am not talking about quoting verses about this or that, or telling you to “claim the victory” or other cheap trite platitudes.  Rather, as one battle hardened, battle- weary soldier to another.

All of us, sooner or later, to one degree or another, will taste many of the same pains:  Addictions, depression, grief, loss, betrayal, rejection, slander, loved ones who wrong us in a significant way, other Christians who turn on us, etc. etc.  Really, the list is endless.  Not one of them will come into our lives without first having to pass through the hands of God.

Even as Satan (yep, I do believe he’s real) could not touch so much as one of the hairs on Job’s camels without God’s permission, so too, nothing comes into our lives without the same permission.  There is not one harsh word, one look, one bit of slander, not one wrong doing that comes into our lives without first passing through the nail- pierced hands of Jesus.

Let me close by sharing a few things  I learned when I passed through an extended season of depression and discouragement, at a time where I lost all but one my closest friends,  and my life goal suddenly disappeared right before my very eyes. (I’m not talking about some short term, project, but something I had invested years of my life.)

#1  My focus was to remain “connected” and “soft” to God and  other people.  when I was tempted to get angry ( I was and you will be)  I could not afford to harbor bitterness.  Instead  I needed to pray God’s best over their lives.  I did it, and so can you.

#2  I wrote out my inner turmoil on paper.  Gradually it helped to clarify the many feelings and thoughts swirling around in my head.

#3  If you are depressed, you are in great company.  Elijah, David, Spurgeon, Luther, Winston Churchill and a host of modern day Christians have walked where you are walking.   Sometimes, it’s not due to any wrong doing on your part whatsoever.  Sometimes it is as simple as “burning the candle on both ends.”  Vince Lombardi put it like this; ” Fatigue makes cowards of us all.”

#4  Schedule some R and R into your life. (Remember Elijah?  God sent him to a B and B (well sort of);-) to recharge)

#5  Seek Godly counsel, someone removed from your situation with whom you can “unpack” the whole tangled mess.  My experience has been that some of these things are rather complicated.

#6 Don’t beat yourself up, cut yourself some slack, be patient with yourself.

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I originally wrote this back in 2000.  Since that time, I’ve dealt with the sexual assault of a daughter,  some heavy duty marriage stress,  one child landing in jail for drunk driving, just to name 3 significant life events.  I’m still on track and plodding .  DM

The view from inside the fish bowl. A young pastor’s wife shares her story.

November 10, 2011

“I want to be free of self pity. It is a tool of Satan to rot away a life.”

Barbara Youderian

I have often pondered these words of Barbara Youderian, one of the widows of the five American missionaries murdered by the Auca savages in Ecuador on January 8, 1956. This type of devastating event has never occurred in my life (thankfully!), but even so, all too often I give in to the sin of self pity rather than following the example of the apostle Paul who wrote, “...I have learned the secret of being content in any and every situation.” (Philippians 4:12).

I am going to share two lessons (still in process!) that God began to teach me while my husband was in his first pastorate position.

First, I learned that there can be no true contentment without true forgiveness. I was aware that criticism would go hand in hand with ministry. I expected it.

However, I was not prepared for the depth of the hurt when it did come. I don’t know which is more painful–the criticism that is unfair and untrue, or the type that is true and IS justified.

Could we have done more, prayed more, reached out more in the ministry?

Most likely.

Have I at times been hypercritical of others, misunderstanding my brothers and sisters in Christ and judging them unfairly?

Most definitely.

I have been guilty of the very things of which I have accused in others. I would be wise to remember the words of Solomon in Ecclesiastes 7:21-22:

“Do not pay attention to every word people say, or you may hear your servant cursing you–for you know in your heart that many times you yourself have cursed others.

While I was feeling used and unappreciated by the church community, was I not also guilty of taking those around me (specifically my immediate family) for granted? So how could I not forgive? Oh Lord, may I not be like that unmerciful servant in Matthew 18 about whom Jesus said, “This is how my heavenly Father will treat each of you unless you forgive your brother from your heart.”

The second contentment lesson occurred through the painful isolation I experienced in the church

. This was completely unexpected; no one had ever warned me that some church communities simply do not want the pastor or his family involved in their lives.

Even though my husband’s job happened to be that of a minister, I still felt like a normal person! I still needed friends. I just wanted to be “one of the girls.”

For years I wondered what was wrong with me.

Did I not wear nice enough clothes?

Was I just too much of an oddball to fit in with my peer group?

Every Sunday my spirit would sink as I watched the other young families congregate, enjoying fellowship with each other while I was starving for community. Realizing that I should have been rejoicing that our church was growing and thriving didn’t offer me much comfort then.

The enemy got to me in a couple of ways here. Not only was I hurting from the lack of friendships, but it was also like there was a constant accusing voice whispering in my ear that I must certainly be spiritually inferior, because otherwise the “cool Christians” would certainly want me on their “team” and invite me to their exclusive Bible study, and the women would surely come to me for counsel, prayer, or to “just talk,” etc., wouldn’t they?

If I was really the “good Christian” I was supposed to be, wouldn’t I have friends? Wouldn’t people look to me as an example?

I felt so ignored, isolated, and excluded that Sundays for at least a couple of years were completely dark. And as I gave in to the despair, I became incapacitated, useless, ineffective, and unable to see the blessings and beauty around me.

Even the love and acceptance of my husband and children didn’t matter to me in those dark times. It was only after desperately seeking advice from other godly people who had been there–women who had gone through what I was talking about–that I was able to begin accepting that maybe all this isolation was just related to the position I was in–pastor’s wife.

Then it also happened that on one of those Sundays during congregational worship, the hymn, “Be Thou My Vision,” was sung. I don’t know how many times I had heard or sung this song in my lifetime, but it was like I was hearing for the first time the words, “Riches I heed not, nor man’s empty praise…….” I had been guilty of believing the lie that contentment was not possible with the life I had now, with the gifts God had blesses me with, that I needed something else–friends, and more specifically, the approval of the Christians around me, whose opinions I had come to value more than the opinions of God Himself.

I just hope that now, having learned a little more about humility from my experiences, that I will be more likely to notice the lonely person, less likely to devalue someone (on the basis of appearance, career, spiritual gifts, or whatever) and more careful even with my Facebook posts, so as not to cause someone to feel excluded by what I do/say.

God is not honored when we show favoritism. But neither is He honored when we hold back in welcoming people, giving in to intimidation as we assume their gifts (spiritual or otherwise) are more important than ours.

I am very thankful for the lessons I am still learning about contentment, but I will admit that it is very refreshing to now be in a church environment which is more representative of a true community. From day one, we have felt warmly accepted and welcomed here. The memories of the past still hurt sometimes, but I know God had reasons for placing me (and my family) where He did, “being confident of this, that he who began a good work in [me] will carry it on to completion until the day of Christ Jesus” (Philippians 1:6).

________________________________

Post script. I (DM)  recently asked some of my friends to think  on the topic of Contentment.  Some of you reading this  were part of that project.  This is the first of several  essays on contentment.

If you’re a parent of a special needs child

August 26, 2011

 What I would tell you….

I sensed someone watching me as I comforted my daughter after a particularly traumatizing dentist appointment at the Children’s Hospital. I looked up and saw you staring at us from across the waiting lounge. I didn’t pay much attention, as I have grown accustomed to the curious eyes of onlookers. Our daughter was born 7 ½ years ago and after an abrupt lack of oxygen at birth, she changed the course of our lives forever. Perhaps, our lives unfolded exactly as they were meant to — they just didn’t unfold in the way we had imagined or planned.

I talked to my daughter, kissed her and hugged her. I was giving her a brief break before putting her through the next traumatic experience of the day ~ the car ride home. Having cerebral palsy is the least of her worries but this condition can turn a car seat into a torture chamber.

I stood up to gather our things, my daughter in my arms, and it was then that I noticed you were holding an infant. It was difficult to know for certain how old she was. I knew immediately, though, that you were one of us. I knew that only recently your life had changed drastically and you sat here in this Children’s Hospital wondering, “How did we get here?” I should have recognized that shocked stare because I once had it, too. And I assume that the man sitting next to you, looking equally tired and shocked, was your husband.

I made my way toward the doors and as I passed you, our eyes met and I smiled at you. You smiled back and for a moment I knew that you knew that I understood.

If I could, I would tell you although you might not believe it right now, you will be okay. I would tell you to dig deep within yourself because you will find the strength and resilience somehow and it will surprise you. I would tell you to honour your feelings and let the tears flow when they need to. You will need the energy for more important things than holding in emotions.

I would tell you that the man sitting next to you might cope differently and he might even want to run the other way. But I would tell you to hang on because he is scared and he really doesn’t want to leave you. I would tell you to look after yourself so that you can care for your daughter. Don’t underestimate the power of good nutrition, exercise, sleep, supplements and an empathetic therapist.

I would tell you that grief will come and it will confuse you because how can something that brings such joy also bring such sadness? I would tell you to let people into your lives to help you. Our children really do require a village to raise them. Access all of the services and resources available. Find someone who can learn how to care for your child so that you can have breaks and so you and your partner can go on dates… even little ones like a twenty minute stroll outside holding hands, sharing wine on the deck or even catching a movie.

I would tell you that you know your child best of all and no matter what you are told by the doctors and other professionals who will be a part of your life, YOU know the answers. You will teach them about your child. At times you will question the validity of your intuition but after a while you will become profoundly aware of how accurate your gut feelings are when it comes to your child.

I would tell you not to be a martyr. Caring for your child will require tremendous focus and unimaginable energy and it can burn you out and make you sick when you least expect it. I would tell you to let your guard down along the way so that you can stay healthy in your mind and spirit.

I would tell you to seek out other mothers like yourself. This is, indeed, the road less travelled and you will feel very alone along the way especially in the company of healthy children and their parents. Yes, you will feel very isolated but know that we are here. Sometimes you have to look a little harder but we are here. You can find us online, in support groups and wandering the halls of the Children’s Hospital.

I would tell you that you will know far too much about the human anatomy, neurology, gastro-enterology, feeding tubes, pharmaceuticals, and so on, than a mother should ever have to know. I would also tell you to do some research to inform yourself but be very careful not to be overwhelmed by the internet and all of the information available to you. Having some trust in what your child’s specialists tell you can be very grounding. Other mothers and fathers of children like ours can be a wealth of information.

I would tell you that this isn’t an easy life. It is tough: there is no doubt about it but you are very capable and the rewards are great. You may never see your child graduate from university, walk down the aisle or give birth to your grandchildren but you will feel pure joy when your child laughs for the first time at the age of 3 years and 8 months. You will celebrate the moment when you connect with your non-verbal child. You will call your spouse at work to tell him that she has gained 4oz. because weight gain is always a struggle with our children.

I would tell you that you will have to witness procedures and surgeries and suffering well beyond what any parent should ever have to bear. But, I would tell you that you will be courageous and comforting because your child will be experiencing far more suffering than any child should ever have to endure.

I would tell you that your life will not resemble the life you had planned. It will be as though you landed in Holland instead of Italy but after some time, you will adjust the dreams you had and this reality will be normal to you. You will dream new dreams.

I would tell you that you might find yourself staring death in the face during close calls. You will be asked to fill out DNR (Do Not Resuscitate) forms and although you might make decisions to not resuscitate in the event of a cardiac arrest, when the moment arises, you will panic to think that it could all come to an end. And I would tell you to not feel guilty in the darkest moments when you pray to God to take your child if it would mean the suffering would end. This might horrify you but know that your love for your child is so great that at times you will believe that death would be a blessing.

I would tell you that others will not get it. They can’t. This is a very unique and complex journey on all levels. We cannot expect anyone to get it. And I would tell you that people — the cashier at the grocery store or your insurance broker or even your hair stylist — will say stupid things like, “God only gives these special kids to special mothers” and “God will only give you what you can handle.” You will nod and smile but eventually you will look them right in the face and tell them that those simple maxims are a bunch of bullshit.

I would tell you that imagining your future will be bittersweet and may involve a Plan A and a Plan B. Plan A will be what you will do if your child outlives the predicted life expectancy set forth by the experts and Plan B will come into play if they do not. You will catch yourself casually discussing your future with the code phrases of Plan A and Plan B.

I would tell you that grief will creep up on you after years have passed and you least expect it like at a wedding when the father and bride have their first dance or when you hear a birth announcement. It will also creep up on you when you see yourself in a new mother who is just beginning this journey.

I would tell you that you will recognize her because she is you from 7 ½ years ago. And you will want to run to her and hug her and tell her that everything will be okay. You will want to save her from the pain and the hardship and the unknown.

But I would tell you that when you find yourself sitting at the Children’s Hospital and you see a new mom and dad who are just starting this journey, you smile at them and walk by as they have their own path to travel and it will be different than yours. It may be longer or shorter. It may be more or less complicated.

I would tell you that her searching eyes are looking for some sign that she will survive this. And you, smiling as you pass, with your child arching all over your shoulder, will let her know that yes, she will survive this and may even thrive.

Julie Keon
June 29th 2011

Julie Keon’s website is  here

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Our daughter Angie, posted a link to that letter tonight on facebook.  She and her husband Matt are the parents of two beautiful children.  Their youngest Rigg is a special needs child.

Driving Mr Rigg

You owe me money

June 17, 2011

Brother and myself pouring a basement wall

Two people warned me you were a tight @#% when they heard I had agreed to do some work for you.

I thought to myself…It won’t be a problem because while I didn’t know you all that well, I knew you professed to be a Christian, so, as long as I made sure I put everything  in writing, and did my normally good job of communicating, there won’t be a problem.

And here I sit, 6 weeks after the fact -  I sent you a second invoice this week and have yet to be paid.

I have pretty much decided unless something really drastic changes I am not going to do any additional work for you.  At this point, I’m out $300 in wages and $100 some dollars in material.

I do intend to contact your pastor if I have to.

I realized this morning this is really not about me.

Up until this point, I have been personalizing your disrespect and fighting the tendency to get angry.

This morning I realized what I really think is happening is God may want to put the spot light on this pattern in your life.

It wouldn’t have been so frustrating for me if I myself hadn’t been feeling a cash flow pinch.  Honestly, if I had several thousand dollars of “cushion” in the work checking account, I probably ….I say probably….wouldn’t have let this get under my skin like it has.

There is usually always two sides to every misunderstanding.

In this case, if it comes down to me having to sit down with you and your pastor (instead of taking you to small claims court)  I’m 95% sure this is a going to be a slam dunk win in my favor.

You’re not the first “christian” ( I use that term loosely) I’ve had dealings with  who have a nasty scrimping,  miserly worrisome attitude about money.

Jokingly (but seriously) I’ve said more than once, I would rather work for a bunch of pirates rather than work for  some  “christians.”

At least if I agreed to work for a pirate, I would know going into it what I was dealing with and proceed accordingly.

You are almost a contradiction in terms.

My friend Jim told me last week, he hoped you wouldn’t pay me :-)   He told me, this may be the very thing you need to have happen…me asking to sit down with you and your pastor, so as to  put the spot light on this issue in your life.

I’m getting to the point this morning where I’m OK with that.

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Update as of 6/18/2011 

I met with the customer in person this morning.  Long story short, I got paid.  The end :-)

After Cancer Everyday Miracles by Dana Jennings

May 23, 2010

taken from the

 New York Times

Sunday, May 23, 2010
_______________________________________

April 6, 2010, 11:01 am

        It has been two years since I learned that I had prostate cancer, and a bit more than a year since I had any treatment for what I eventually learned was an aggressive Stage 3 cancer.

      Being from the sticks of New Hampshire, I’m reminded of a woods that has burned. There is still plenty of scorched earth and charred deadfalls, but, more important, the green scrub and optimistic wildflowers of normality are creeping back. Dana JenningsI’m in pretty good shape these days. I live from PSA test to PSA test – every three months – and so far, so good. I still get more tired than I would like because my body chemistry is still in ferment from hormone therapy. And, to get an erection, I have to inject my penis with Cavereject, which stimulates blood flow. (It’s not as bad as it sounds. Honest.) 

       But those are just physical details. I’m more interested in what I’ve learned from my cancer, how it has actually – and unexpectedly — changed me. Cancer is a hard teacher, but a teacher even so. More than ever, I know that I am blessed in sons and my marriage. That on a cold winter’s night a pint of porter in the company of a good neighbor is a bounty in this uncertain world. Yes, cancer is about an unwanted mutiny in the body. But, too, it’s about love and transience.

      Postcancer, I love who and what I love more deeply than ever. And I keenly feel in my bones the sheer evanescence of our existence. I’ve also undergone changes that are more obvious. The anger that raged within me after my diagnosis has mellowed to a simmer — I don’t bellow at speeding cars anymore. I do admit, though, that my tolerance for jerks and trivia has vanished as time’s arrow pricks at my back. I’ve become more myself these past two years, having shed the need to impress anyone.

       Cancer cells also knock the ego down a peg or two. I’m even more obsessive about my, well, obsessions. I binge-read, gorging on books and tearing through genres like some kind of literary wolf: fantasy (Tolkien, Rowling, George R.R. Martin), crime (Leonard, Burke, Stephen Hunter) and poetry (Li Po, Tu Fu, Basho).

        And when I realized recently that the last baseball season that truly floored me was in 1975, when the Boston Red Sox and the Cincinnati Reds played their epic World Series, I galloped to the stacks to gobble up books about the primal days of the major leagues and the Negro leagues. (Yep, Ted Williams still hit .406 in 1941.) That reading, in turn, led me to Ebbets Field Flannels, and the wool replica of Satchel Paige’s 1942 Kansas City Monarchs home jersey that hangs in my closet.

      Like ol’ Satchel, I don’t look back, because I don’t want to see what might be gaining on me.

       Most important, I think, I continue to consciously slow down as our maniacal culture speeds up. I’m constantly on the lookout for those miracles in a minor key that present themselves to us each day.

         I crave a certain fierceness of perception, am more open to the fullness of life seized in one small moment or gesture:

       Bats carving inky compulsories in the purple-black dusk.

      Fern, the sweet apricot cockapoo up the street, who likes to plant her petite butt on my foot.

        The topographical hieroglyphics of moss and lichen thriving on rock and stone.

      The eternal summer conjured by Dick Dale’s feral surf guitar.

       The dank musk of rain on the wind.

       The down-home holiness of bluegrass gospel sung by Bill Monroe and the Stanley Brothers.

        A wicked curveball just nicking the outside corner of the plate.

       The puppy breath of our two new golden retrievers, smelling like wet and bitter grass.

        The daredevil gray squirrels that tap-dance along the back fence.

         April snow, which my country-boy father calls the poor man’s fertilizer.

         So … what are your miracles in a minor key?

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My friend Lisa from New York shared this with us on Facebook this morning-  thank you Lisa!


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